FabryFamilies.org is an organization founded by those suffering from Fabry Disease and their families with the purpose of supporting those with the disease, their families, and the caregivers.

FabryFamilies.org supports the Fabry Community through raising awareness of the disease by providing a website with news, information, support, and a discussion forum.

We are here to support you!  Tell us how we may help: support@FabryFamilies.org.

Our organization's current focus is supporting the Fabrazyme® Petition.  How is the Fabrazyme® shortage affecting you?  Take our survey which would be used to assess the impact of Genzyme's drug rationing.  Please let us know and the Fabry Community know how the current crisis is affecting you!

We are looking forward to a long, productive history for this website.  If you have a suggestion for the website, please email us at: suggestions@FabryFamilies.org.

Features Coming Soon to FabryFamilies.org!

• A Blog Tool and Publishing Platform - which will be accessible from the Discussion page.
• Polls - poll questions that are of interest to those in the Fabry Community.  Poll questions will appear on the Home page.